I often asked myself, why him? Why us? What did we do? Why can't it attack murderers, and rapist? Truth is...I don't have time to ask questions...only time to act. For cancer is not for the weak, it's for the strong...and the strong will SURVIVE!!!

Saturday, December 29, 2018

Hospice, Heartache, and Healing

We are exactly at one month of hospice.  Its actually a lot better than we thought.  First we didn't think he was going to make it through the weekend.  All of our friends came over.  It was great.  We had food and fun.  The kids were wondering what everyone was doing here.  I didn't have the heart to tell them at the time what was going on.

 Tony needed oxygen and hospice had moved in so quickly.  I think what had gotten to me more than anything else was they told they said it was going to be fast.  I guess they didn't know my Tony.  He never let anything go quickly.  He sure as heck wasn't going to give up.

There were still things that needed to be said.  Places to go and people that we needed to see.  That's when I decided we were going to ENJOY hospice.  We were NOT going to jus sit here and watch Tony fade.  We were going to LIVE.  Tony got to make it to Aydin's football games, got to teach Austin how to fix up his truck, snuggle up with Ashton, enjoy time with his granddaughters, time with Anthoney and Alec and everything.  Tony even had the opportunity to sit down with the boys and express his expectations after he's gone.  Remind them we are still a family even though he's gone.  NOTHING will ever change that!!  I think what as almost more important, was the fact that we got to spend time as whole family unit...as LEONARDS.

 Christmas Eve, they were all here.  No pictures, not poses, just hot dogs, marsh mellows, pajamas, laughs, and even some tears.  You can't expect  a night with 5 brothers to go completely smooth can you?  My parents came and mom forgot the presents an hour away.  My dad graciously went and retrieved them.  The look on the older boys faces were priceless.  WHO DOES THAT??  A great husband, father, and grandfather does.  Its life by example.  Tony and I got to enjoy it all together.  Aydin got a little upset when we pulled out old family videos and pictures because he told me it wasn't fair that he wouldn't be able to do that.  I said Aydin, you have your OWN memories and daddy will still be at everything and in everything you do and WE DO!!!

I truly wanted them to all make memories.  I wanted to give them the chance to say I'm sorry, I love you, and anything that they felt they needed to say.  Instead my little ones, I sometimes wish they didn't know.  They have fears that they didn't have before.  Ashton often says, Daddy, "I don't want to lose you," and breaks down.  He gets mad when people come to visit because he feels they are taking time away from his time.  But at the end of the day, I remind him that none of us are promised tomorrow, so if you want to snuggle up with me or daddy, DO IT!!!  Aydin I have found has become a protector of me.  He doesn't like to see me upset.  He makes comments like, "good to see you eating mom."  Or "Ashton, don't be disrespectful!!"  One night Aydin got mad at Tony, and Aydin ran into my office and told me he hated him.  "I HATE HIM MOM."  I said, "No you don't.  You hate what the cancer has done to him."  He looked at me, and a tear fell from his eye.  I said, "Aydin, if I told you that dad just took his last breath, you would never be able to live with yourself with what you just said."  He agreed, and I told him now dry those eyes, and go tell him you love him and apologize.  See, that's a normal life lesson.  Suck it up, apologize, and move on.  Raising the boys and teaching them right from wrong doesn't stop just because Tony is sick...it just hits them with a deeper reality.

Christmas morning was no different than last year, except I only made frozen pizzas for dinner.  I'm sorry I needed a break!!  HAHAHA The next day Anthoney and Akiya brought our granddaughters over.  We made slime, it was sooo much fun!!  :)  All the boxes were checked.  The list was about complete...and Tony has begun to decline...please pray for all of us...we are on hard times.





Friday, December 14, 2018

EVERY DAY IS A GIFT

We told the boys...it was gut wrenching, it was hard.  Aydin (10) yells NO NO NO MOMMY NO!!  And runs down the hallway.  Meanwhile Ashton (8) throws himself on Daddy's chest crying, WHAT DOES THAT MEAN? WHAT DOES THAT MEAN?  The four of us cried, and then I took a deep breath and said, It means no more hospital stays, no more doctors, no more poking, no more surgeries, we can be home as a family!!  The boys stopped crying and said YES!!!  :)  Kids are amazing!!  They remind us that we HAVE to look at the bright side of things.  With a fog there are always blessings.

We received letters from Duke to give to the boys' school so that the school would be patient for any missed days or assignments.  I however, still was going to try and keep things as normal as possible.  After about a week of coming home early from school and having a messy house, it was COME TO JESUS time.  I lined them up and said...Boys...I get it, we got some really crappy news.  But you know what, the sun comes up, the moon will too, and the dishwasher still has to be unloaded and loaded...the trash, still needs to make it to the curb, our lives...STILL go on.  We don't just STOP living and doing what needs to be done.  We are NOT going to just sit around and wait for daddy's end.  The next week Tony went from rocky to stable.  He didn't need his O2 as much, he was getting around more, wanting to go out shopping.  He even bought a new handgun...I mean really, what am I supposed to say, No?

Our family stopped grieving, and started LIVING again.  Tony even made it to Aydin's state Championship game.  Not only did he make it...WE WON!!!  Aydin played one of his best games ever.

This will be a short entry today because I'm spending more time with Tony and my boys.  Tony's hospice agency granted Tony's final wish, to see Aydin play in Florida at Nationals.  TONY IS LIVING...HE WILL NOT LAY DOWN!!!  Just because Hospice is here does NOT mean you die tomorrow, it means you ENJOY LIFE COMFORTABLY.  I wish sometimes we had brought hospice in earlier because Tony is finally not in as much pain as he was.  He can receive medications without fail and question, I have help if need be, we have nurses who are members of our family now.  Oxygen delivered same day, shower chairs, wound care.  Our warrior is NOT giving up yall, he is STILL LIVING.  He is tired, he is weak, but his mind is full and there and loving.  Yes, Tony is losing weight and has issues eating, but that's not what this is about, its making EACH DAY A GIFT.  A TREASURE. A BLESSING.

My Tony is strong with his heart and mind.  I'd rather have that, than anything else!!!

We can't ever thank everyone enough for the love and support that we have received over the past month especially.  Tony said, "I've never felt so loved in all my life."  From the donations from mealtrain, household supplies from the stomach cancer warriors group, Debbies Dream Foundation for their continuous support and understanding, my PARENTS and BFF Nikki for dropping everything to let me cry and be selfish...and for all the newly diagnosed, i'm sorry you are going through this...welcome to the club.  YOU ARE NOT ALONE.  Tony has had 7 AMAZING years and is still holding on.  Don't give up hope, treasure each moment, and when you are tired, its ok to be tired...you are not weak, you are the strongest for admitting so.  I LOVE YOU ALL!!!

OUR JOURNEY ISN'T OVER!!!